Henry started walking a couple of days after Christmas! We couldn't
believe it! I was making dinner and all of a sudden I just saw him
walking down the hallway towards me. He walked all the way into the
kitchen with the biggest smile on his face. He knew he could do it!
His physical therapist, Cathie, was so proud
of him. He will continue PT to help with coordination and balance. We
are finding that after awhile of running around, he starts to get really
wobbly and off balance. He has so. many. bruises. from falling onto
everything. If people didn't know him and his situation, they'd probably
think he was abused! gasp! BUT if we use his spin board when he starts
to get really off balance, he gets back on track. It stabilizes him
somehow and fixes his equilibrium. It is the weirdest thing ever to see
in action, but we're just glad it works. We spin him 10 times to the
right, stop and put pressure on his shoulders, and then spin 10 times to
the left, stop and put pressure on his shoulders. That's followed by
his joint compressions, and voila! He's like a whole new, balanced, kid.
Here he is in action :)
Henry can walk!
http://youtu.be/ETIKmrWJWJA
Saturday, January 5, 2013
Friday, December 28, 2012
We survived Christmas.
Yep. That pretty much sums up Christmas.
We survived.
Everyone was feeling better. Bob survived the worst pink eye of his life. We ended up in the ER with him about a week before Christmas because the doctor said he had an "eye emergency". Luckily, he didn't suffer from any permanent eye damage and he is back to normal.
I hosted Christmas Eve at our house this again this year. I made a whole slew of tasty appetizers for everyone to much on. Other than that, no frills, no bells and whistles. My parents, Bob's parents, my aunt and uncle and my grandpa came over. My parents spent the night with us, as has become tradition. They set up the air mattress on the living room floor and got to be with us Christmas morning when we opened presents. We may or may not have had a bit too much wine and beer before we went to bed... But we always have fun!
Bob's parents really disappointed us this year. They always come over in the morning to see the kids open presents, but this year they told us they weren't. And they never really gave us a reason why. Bob's sisters were also supposed to come into town and we were supposed to have this epic Christmas day, but they both cancelled. So, it was just our little family with his parents on Christmas afternoon. Peggy did make a 6 lb prime rib, which was a sight to behold. And she is flat out the best hostess ever. Her house was absolutely gorgeous!!
Henry did really well considering the craziness. He got all kinds of sensory toys that he LOVES. We are trying a new white noise machine instead of the box fan in his room at night. He got lots and lots of trucks to push around the house, and a sit n spin. He can't really do the sit n spin yet, so we are still using his spin board from the OT for now.
Viv got everything she wanted and then some. She was very tolerant of Henry, which is unusual, but a Christmas blessing for us all!
After all the festivities were over, Henry would NOT go to sleep last night. He was up at least thirteen times. After that point, I lost count. I finally dozed off around 3:30, and he fell sound asleep around 4 am and then slept until 9 am. He wouldn't go back down for his nap today either. He finally conked out at 3. I had to wake him up at 6 so he would hopefully sleep tonight. As of right now, bob has him in our bedroom and is trying to get him to sleep. I'm at my wits end tonight and needed a break. Thank you Bob!
It's amazing how much he needs his schedule. If it's interrupted at ALL, we pay dearly for it the next week or so. He has been super crabby and irritable. I've tried all his OT tricks today and nothing is helping. He just needs his schedule!!
That said, I can't wait to get us all back on our regular schedules. I know I probably sound like a cranky pants, but I cannot wait to take down our Christmas decorations! This Christmas season has been really rough, and I am REALLY looking forward to 2013. I keep telling Bob that 2013 is OUR YEAR.
Only 5 more days to find out!
We survived.
Everyone was feeling better. Bob survived the worst pink eye of his life. We ended up in the ER with him about a week before Christmas because the doctor said he had an "eye emergency". Luckily, he didn't suffer from any permanent eye damage and he is back to normal.
I hosted Christmas Eve at our house this again this year. I made a whole slew of tasty appetizers for everyone to much on. Other than that, no frills, no bells and whistles. My parents, Bob's parents, my aunt and uncle and my grandpa came over. My parents spent the night with us, as has become tradition. They set up the air mattress on the living room floor and got to be with us Christmas morning when we opened presents. We may or may not have had a bit too much wine and beer before we went to bed... But we always have fun!
Bob's parents really disappointed us this year. They always come over in the morning to see the kids open presents, but this year they told us they weren't. And they never really gave us a reason why. Bob's sisters were also supposed to come into town and we were supposed to have this epic Christmas day, but they both cancelled. So, it was just our little family with his parents on Christmas afternoon. Peggy did make a 6 lb prime rib, which was a sight to behold. And she is flat out the best hostess ever. Her house was absolutely gorgeous!!
Henry did really well considering the craziness. He got all kinds of sensory toys that he LOVES. We are trying a new white noise machine instead of the box fan in his room at night. He got lots and lots of trucks to push around the house, and a sit n spin. He can't really do the sit n spin yet, so we are still using his spin board from the OT for now.
Viv got everything she wanted and then some. She was very tolerant of Henry, which is unusual, but a Christmas blessing for us all!
After all the festivities were over, Henry would NOT go to sleep last night. He was up at least thirteen times. After that point, I lost count. I finally dozed off around 3:30, and he fell sound asleep around 4 am and then slept until 9 am. He wouldn't go back down for his nap today either. He finally conked out at 3. I had to wake him up at 6 so he would hopefully sleep tonight. As of right now, bob has him in our bedroom and is trying to get him to sleep. I'm at my wits end tonight and needed a break. Thank you Bob!
It's amazing how much he needs his schedule. If it's interrupted at ALL, we pay dearly for it the next week or so. He has been super crabby and irritable. I've tried all his OT tricks today and nothing is helping. He just needs his schedule!!
That said, I can't wait to get us all back on our regular schedules. I know I probably sound like a cranky pants, but I cannot wait to take down our Christmas decorations! This Christmas season has been really rough, and I am REALLY looking forward to 2013. I keep telling Bob that 2013 is OUR YEAR.
Only 5 more days to find out!
Tuesday, December 4, 2012
Everyone is still sick!
I ended up taking Henry to the doc's the day after my last post. It turned out that he had croup, and we were on ER watch for 2 days with him. Talk about being a nervous wreck! And, he wasn't able to go to OT because he was still sick.
Now, a week later, Bob and Viv are sick! I'm at my wits end with all these germies! The only silver lining is that I haven't gotten sick... Yet.
Henry has been sleeping much better since he has recovered from croup. In fact, he has been improving by leaps and bounds this past week. His physical therapist was really impressed with him last Friday. He's starting to cruise around furniture, AND he's starting to crawl. At 17 months, he is FINALLY getting the hang of crawling!! He still prefers butt scooting, but he's crawling more and more every day.
We also figured out that if we close his door all the way at night, he sleeps better. He will only wake up two or three times instead of five or six. Yay! More sleep for me!
Now we just have to get rid of all these germs!!
Now, a week later, Bob and Viv are sick! I'm at my wits end with all these germies! The only silver lining is that I haven't gotten sick... Yet.
Henry has been sleeping much better since he has recovered from croup. In fact, he has been improving by leaps and bounds this past week. His physical therapist was really impressed with him last Friday. He's starting to cruise around furniture, AND he's starting to crawl. At 17 months, he is FINALLY getting the hang of crawling!! He still prefers butt scooting, but he's crawling more and more every day.
We also figured out that if we close his door all the way at night, he sleeps better. He will only wake up two or three times instead of five or six. Yay! More sleep for me!
Now we just have to get rid of all these germs!!
Monday, November 26, 2012
I've got to start somewhere.
I don't know what's wrong with my son.
He is a beautiful, almost 17-month-old, curly headed, blue-eyed angel who happens to cry incessantly. We've been to physical therapists, occupational therapists, two neurologists, and of course his pediatrician, and have come to the conclusion that he might have something called a Sensory Processing Disorder. What in God's name is that?
Henry has been sick since Saturday night (right now it's Monday night). I literally haven't been able to leave his side in 36 hours. My husband, Bob, just came home from work about an hour ago, and right now is the first time I've been able to have a bit of alone time.
With that spare time, instead of relaxing, I decide to start a blog. Maybe I'm the one losing my mind.
I need a place to vent and process my thoughts. I started a group on Facebook to keep close family and friends up to date on Henry, but I feel like I need something more than that. Why a blog? Who the hell knows. It's just what came to mind tonight.
So here I am, wondering what the hell is wrong with my son, and writing about it.
Maybe I will find some relief with this, and maybe I can figure out Henry Wayne just a little bit more. That would do our family a world of good.
To back up, I am a 32-year-old mom to two children. Vivian Louise, my scary-smart six year old, and Henry Wayne, the 16-month-old who happens to be the topic of this blog. I've been married for nine years to my Bob, and we also have a six-year-old mutt, Harvey Dog. That pretty much rounds out our family, oh with the addition of Viv's two fish, Splashy and Fin-bar.
Henry has turned our family upside down. From the moment he was born, he has rocked our world to the very core, and, as much as we love him, not always in a good way.
We noticed at around 9 months he wasn't recognizing who "mom" was or "dad" was or any type of words for that matter. He had no interest in walking, talking - all he wanted to do was EAT. And by eat, I mean he would stuff his mouth with any type of food in grabbing distance. It was a sight. We couldn't feed him enough food.
Sleep has been non-existent from the time he was born. For example, today (granted he is sick) he has slept 1 hour since 5 am. It is now 8:19 pm.
And my Bob has just walked back in the room with Henry (who is crying), so my free time is over.
To be continued.
He is a beautiful, almost 17-month-old, curly headed, blue-eyed angel who happens to cry incessantly. We've been to physical therapists, occupational therapists, two neurologists, and of course his pediatrician, and have come to the conclusion that he might have something called a Sensory Processing Disorder. What in God's name is that?
Henry has been sick since Saturday night (right now it's Monday night). I literally haven't been able to leave his side in 36 hours. My husband, Bob, just came home from work about an hour ago, and right now is the first time I've been able to have a bit of alone time.
With that spare time, instead of relaxing, I decide to start a blog. Maybe I'm the one losing my mind.
I need a place to vent and process my thoughts. I started a group on Facebook to keep close family and friends up to date on Henry, but I feel like I need something more than that. Why a blog? Who the hell knows. It's just what came to mind tonight.
So here I am, wondering what the hell is wrong with my son, and writing about it.
Maybe I will find some relief with this, and maybe I can figure out Henry Wayne just a little bit more. That would do our family a world of good.
To back up, I am a 32-year-old mom to two children. Vivian Louise, my scary-smart six year old, and Henry Wayne, the 16-month-old who happens to be the topic of this blog. I've been married for nine years to my Bob, and we also have a six-year-old mutt, Harvey Dog. That pretty much rounds out our family, oh with the addition of Viv's two fish, Splashy and Fin-bar.
Henry has turned our family upside down. From the moment he was born, he has rocked our world to the very core, and, as much as we love him, not always in a good way.
We noticed at around 9 months he wasn't recognizing who "mom" was or "dad" was or any type of words for that matter. He had no interest in walking, talking - all he wanted to do was EAT. And by eat, I mean he would stuff his mouth with any type of food in grabbing distance. It was a sight. We couldn't feed him enough food.
Sleep has been non-existent from the time he was born. For example, today (granted he is sick) he has slept 1 hour since 5 am. It is now 8:19 pm.
And my Bob has just walked back in the room with Henry (who is crying), so my free time is over.
To be continued.
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